Spotlight on Rare Diseases

The Newsletter of the National Institute of Health-funded Rare Diseases Clinical Research Network

Fourth Network Funding Cycle Launches Changes, Welcomes Challenges
Tiina K. Urv, PhD Program Director, Office of Rare Diseases Research

A Rare Disease Physician-Scientist Reports on Impacts of COVID-19
Mustafa Sahin, MD, PhD Principal Investigator, Developmental Synaptopathies Consortium (DSC)

Research Survey for Rare Disease Patients and Their Families About Impacts of COVID-19